I've been on chemo for over a year, mostly IV chemo. Many folks ask me what is it like and what are the side effects? In my last post in October, I mentioned fatigue. And, yes, for me, that's the most frequent and critical effect.
I tried to come up with some condition that a non-chemo person could relate to that would help them "feel" what I'm going through. The closest thing I can think of is a very bad case of the flu. No respiratory symptoms for me (for the most part), but a continuous, unabated, relentless, fatigue; aches and pains; and brain fog. It's not for the faint of heart.
You lose your train of thought before you even reach the depot. A friend talks and you have a response but as soon as he stops talking, you forget what your point was. You even forget the topic. In those cases, it's just better to go out for ice cream.
Speaking of friends, I now have a 3-hour limit on how long I can be with friends. Luckily, that's also pretty much the extent of time most of my friends want to spend with me, so we're all good.
I just had a scan that shows a bit of progression to my liver. DANG IT!!!! @#$#!^%*(&&
OK, I'm better now.
I start on Doxil next week. Doxil is a kissin' cousin of the dreaded Red Devil, Adriamycin or doxorubicin. I call it killer chemo. Most patients call it killer chemo.
I was on a low dose of Taxotere, which thankfully kept my counts at a livable stage. But my cancer simply scoffed at that, "Ha ha, I'll show YOU!! You think you can kill me without killing yourself?! Got another thing coming, girlie."
And so the bugger came back. It's a delicate balance between getting enough chemo to damage the cancer cells without doing permanent damage to my dear person as well.
It's just an all-around CRAP SHOW!!
So, onward and upward to Doxil, may the best (wo)man win...
Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts
Friday, April 19, 2019
Wednesday, October 3, 2018
I'm just so TIAAAAHRD!!
Having cancer brings many symptoms. Many of them are not fit to be discussed in polite society, but the main one suffered by all is FATIGUE.
I always feel lame when I complain about fatigue--after all, who among any of us isn't tired? Tired nearly ALL the time? You ask how someone is doing, and they'll say, TIRED! I'm SOOOOO tired!! But they still manage to work, do chores, drive in traffic, take care of the kids, cook dinner or buy takeout, walk the dog, go to the gym, climb Mt. Rainier, etc. etc. They continue to lift one leg up after the other and walk toward some semblance of purpose. They continue to have coherent discussions.
The kind of fatigue we suffer is DIFFERENT. We suffer the kind of fatigue where you feel like you've been spinning on the Scrambler amusement park ride for two hours. Then you get off and try to find the nearest cotton candy stand. Not to eat it, but to arrange the sticky stuff on your head, as you lost your wig and/or your head scarf and your baldness is on display for all. Better to look like a pastel bouffanted poodle.
Or, the kind of fatigue where you step off a curb and get trampled by a herd of elephants, which you neither saw nor heard because you're so lost in the foggy web of your own cranial matter. As you pass out, you do remember wishing you could go to the circus later. If you weren't so tired.
But I'm mostly tired of this administration. Ooh, tossed that one out there, didn't I? Ever since November 9, 2016, we've been faced with constant, unrelenting, displays of hatred, stupidity, ugliness, hypocrisy, corruption and disrespect from this President and his cohorts. Every day, he lies and/or says something unbelievably thoughtless or evil. And his followers cheer and cheer.
It really wears on a decent person after awhile. Makes me feel like, "Why should I want to live, if this is what our country wants to be?"
Such blind acceptance of these rotting shenanigans goes against everything I learned in school and in church (and from my parents and relatives). There, I learned that "cheaters never prosper", lying is the worst, and sinning was something you should avoid at your peril.
In politics and business nowadays, cheaters and liars are the ones who prosper. You're expected to toe a very specific and deceptive line to succeed in either place. In church nowadays, sinning is a prerequisite in order to be considered an acceptable Christian. God is someone you negotiate with. "Well, I did this sin thing, you know, giggle giggle, but so, you forgive me and I worship you and we'll be good right? And I promise to sin again real soon so we can do this over and over. K'? K'. Oh, and I'll tithe, fer sure. 😉"
I remember hearing one "power preacher" recently say, "What has God done for you lately?" I cringed. In my church, we were taught to ask, "What have you done for God lately?"
That kind of selflessness is verboten today. Only for losers.
Having end-stage cancer and its treatment is hard to work through. Feeling that I'm fighting to live in such a wicked world makes me so very, very, tired.
I always feel lame when I complain about fatigue--after all, who among any of us isn't tired? Tired nearly ALL the time? You ask how someone is doing, and they'll say, TIRED! I'm SOOOOO tired!! But they still manage to work, do chores, drive in traffic, take care of the kids, cook dinner or buy takeout, walk the dog, go to the gym, climb Mt. Rainier, etc. etc. They continue to lift one leg up after the other and walk toward some semblance of purpose. They continue to have coherent discussions.
The kind of fatigue we suffer is DIFFERENT. We suffer the kind of fatigue where you feel like you've been spinning on the Scrambler amusement park ride for two hours. Then you get off and try to find the nearest cotton candy stand. Not to eat it, but to arrange the sticky stuff on your head, as you lost your wig and/or your head scarf and your baldness is on display for all. Better to look like a pastel bouffanted poodle.
Or, the kind of fatigue where you step off a curb and get trampled by a herd of elephants, which you neither saw nor heard because you're so lost in the foggy web of your own cranial matter. As you pass out, you do remember wishing you could go to the circus later. If you weren't so tired.
But I'm mostly tired of this administration. Ooh, tossed that one out there, didn't I? Ever since November 9, 2016, we've been faced with constant, unrelenting, displays of hatred, stupidity, ugliness, hypocrisy, corruption and disrespect from this President and his cohorts. Every day, he lies and/or says something unbelievably thoughtless or evil. And his followers cheer and cheer.
It really wears on a decent person after awhile. Makes me feel like, "Why should I want to live, if this is what our country wants to be?"
Such blind acceptance of these rotting shenanigans goes against everything I learned in school and in church (and from my parents and relatives). There, I learned that "cheaters never prosper", lying is the worst, and sinning was something you should avoid at your peril.
In politics and business nowadays, cheaters and liars are the ones who prosper. You're expected to toe a very specific and deceptive line to succeed in either place. In church nowadays, sinning is a prerequisite in order to be considered an acceptable Christian. God is someone you negotiate with. "Well, I did this sin thing, you know, giggle giggle, but so, you forgive me and I worship you and we'll be good right? And I promise to sin again real soon so we can do this over and over. K'? K'. Oh, and I'll tithe, fer sure. 😉"
I remember hearing one "power preacher" recently say, "What has God done for you lately?" I cringed. In my church, we were taught to ask, "What have you done for God lately?"
That kind of selflessness is verboten today. Only for losers.
Having end-stage cancer and its treatment is hard to work through. Feeling that I'm fighting to live in such a wicked world makes me so very, very, tired.
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